The 20 Best Ellis-Van Creveld Syndrome Doctors Near Me in Ann Arbor, MI

Find the Top Ellis-Van Creveld Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 11 doctor with experience in Ellis-Van Creveld Syndrome near Ann Arbor, MI. Of these, 11 are Experienced.

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11 providers found
    Experienced in Ellis-Van Creveld Syndrome
    Pediatric Cardiology | Pediatrics
    Experienced in Ellis-Van Creveld Syndrome
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
     (0.7 miles away)
    Languages Spoken:
    English

    Katherine Bates is a Pediatrics specialist and a Pediatric Cardiologist practicing medicine in Ann Arbor, Michigan. Dr. Bates is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, Trisomy 18, Patent Foramen Ovale Repair, and Heart Transplant.

    Experienced in Ellis-Van Creveld Syndrome
    Radiology | Pediatric Radiology
    Experienced in Ellis-Van Creveld Syndrome
    Radiology | Pediatric Radiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
     (0.8 miles away)
    Languages Spoken:
    English

    David Bloom is a Radiologist and a Pediatric Radiologist practicing medicine in Ann Arbor, Michigan. Dr. Bloom is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. He is also highly rated in 57 other conditions, according to our data. His clinical expertise encompasses Neurogenic Bladder, PIK3CA-Related Overgrowth Spectrum, Atresia of Small Intestine, and Parkes Weber Syndrome. Dr. Bloom is board certified in Diagnostic Radiology and Pediatric Radiology.

    Experienced in Ellis-Van Creveld Syndrome
    Pediatrics | Palliative Medicine | Internal Medicine
    Experienced in Ellis-Van Creveld Syndrome
    Pediatrics | Palliative Medicine | Internal Medicine

    C.S. Mott Children's Hospital

    1540 E Hospital Dr., Floor 6 Reception C, 
    Ann Arbor, MI 
     (0.7 miles away)
    Languages Spoken:
    English

    Dr. Keefer works on the Pediatric Hospitalist, Pediatric Palliative Care, and Adult Palliative Care services and has a special interest in improving quality of life for chronically ill children and treating pain in terminal illness. Dr. Keefer is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Trisomy 13, CHARGE Syndrome, Early Infantile Epileptic Encephalopathy, and Wildervanck Syndrome. Dr. Keefer is board certified in Internal Medicine, Pediatrics, and Hospice & Palliative Med.

    Learn about our expert tiers
    Experienced in Ellis-Van Creveld Syndrome
    Pediatric Pulmonology | Pediatrics
    Experienced in Ellis-Van Creveld Syndrome
    Pediatric Pulmonology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
     (0.7 miles away)
    Languages Spoken:
    English

    Lindsay Caverly is a Pediatrics specialist and a Pediatric Pulmonologist practicing medicine in Ann Arbor, Michigan. Dr. Caverly is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Secondary Immunodeficiency (SID), Cystic Fibrosis, Newborn Jaundice, and CHARGE Syndrome.

    Experienced in Ellis-Van Creveld Syndrome
    Palliative Medicine | Pediatrics | Hospital Medicine
    Experienced in Ellis-Van Creveld Syndrome
    Palliative Medicine | Pediatrics | Hospital Medicine

    C.S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
     (0.7 miles away)
    Languages Spoken:
    English

    Ishani Sandesara is a Palliative Medicine specialist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Sandesara is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Wildervanck Syndrome, Koolen De Vries Syndrome, Microcephaly Deafness Syndrome, and CHARGE Syndrome.

    Experienced in Ellis-Van Creveld Syndrome
    Neurology | Pediatrics
    Experienced in Ellis-Van Creveld Syndrome
    Neurology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
     (0.7 miles away)
    Languages Spoken:
    English

    Giulia Benedetti is a Neurologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Benedetti is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Absence Seizure, and Lissencephaly 1. Dr. Benedetti is board certified in Neurology W/Spec Qual Child Neuro and Epilepsy.

    Experienced in Ellis-Van Creveld Syndrome
    Medical Genetics | Family Medicine | Internal Medicine
    Experienced in Ellis-Van Creveld Syndrome
    Medical Genetics | Family Medicine | Internal Medicine

    Domino's Farms

    24 Frank Lloyd Wright Dr Ste 1300, Lobby C, 
    Ann Arbor, MI 
     (4.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Tomoyasu Higashimoto is a Medical Genetics specialist and an Internal Medicine provider practicing medicine in Ann Arbor, Michigan. Dr. Higashimoto is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. He is also highly rated in 110 other conditions, according to our data. His clinical expertise encompasses Nevoid Basal Cell Carcinoma Syndrome, Methylmalonic Acidemia, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Propionic Acidemia. Dr. Higashimoto is board certified in Family Medicine and Clinical Genetics & Genomics.

    Experienced in Ellis-Van Creveld Syndrome
    Palliative Medicine | Pediatrics
    Experienced in Ellis-Van Creveld Syndrome
    Palliative Medicine | Pediatrics

    C.S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
     (0.7 miles away)
    Languages Spoken:
    English

    Nurah Lawal is a Palliative Medicine specialist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Lawal is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Trisomy 13, Chediak-Higashi Syndrome, Chondrodystrophy, and Tracheal Agenesis. Dr. Lawal is board certified in Pediatrics and Hospice & Palliative Med.

    Experienced in Ellis-Van Creveld Syndrome
    Otolaryngology
    Experienced in Ellis-Van Creveld Syndrome
    Otolaryngology

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
     (0.8 miles away)
    Languages Spoken:
    English

    Karen Cooper is an Otolaryngologist practicing medicine in Ann Arbor, Michigan. Dr. Cooper is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Choanal Atresia, Retropharyngeal Abscess, Tracheal Agenesis, Laryngomalacia, and Adenoidectomy.

    Experienced in Ellis-Van Creveld Syndrome
    Interventional Radiology | Radiology
    Experienced in Ellis-Van Creveld Syndrome
    Interventional Radiology | Radiology

    Domino's Farms

    24 Frank Lloyd Wright Dr Ste 1100, Lobby C, 
    Ann Arbor, MI 
     (4.0 miles away)
    Languages Spoken:
    English

    Dr. Daniel L. Kirkpatrick is a Clinical Assistant Professor of Vascular and Interventional Radiology at the University of Michigan. Dr. Kirkpatrick earned his medical degree from the University of Missouri-Columbia School of Medicine. He completed his radiology residency at the University of Kansas School of Medicine and went on to complete a fellowship in Vascular and Interventional Radiology at the University of Colorado School of Medicine.Dr. Kirkpatrick specializes in complex IVC filter retrieval and has experience using forceps- and laser-assisted techniques to remove IVC filters with prolonged dwell times. He has a special interest in acute and chronic venous disease, arteriovenous malformations, embolization, biliary disease, and interventional endoscopy. He is a sub-investigator for several ongoing clinical trials for devices intended to treat chronic venous occlusions.Dr. Kirkpatrick is heavily involved in trainee education. Shortly after joining the University of Michigan, he was appointed as the Director of Medical Student Education for Interventional Radiology and is the Director of the annual University of Michigan IR Medical Student Symposium. He is an active member of the Society of Interventional Radiology (SIR) and is a reviewer for the Journal of Vascular and Interventional Radiology (JVIR) and Academic Radiology. He has published articles in JVIR, Radiographics, and the Journal of the American College of Radiology, among others. He is a strong advocate for transgender and gender diverse people, and has published articles on transgender care in radiology. Dr. Kirkpatrick is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Retroperitoneal Fibrosis, Intussusception in Children, Pancreatic Cancer, and Bile Duct Stricture. Dr. Kirkpatrick is board certified in Interventional Radiology & Diagnostic Radiology.

    Experienced in Ellis-Van Creveld Syndrome
    Neonatology | Pediatrics
    Experienced in Ellis-Van Creveld Syndrome
    Neonatology | Pediatrics

    Trinity Health Ann Arbor Hospital

    5301 McAuley Dr, 
    Ypsilanti, MI 
     (4.5 miles away)
    Languages Spoken:
    English

    Lindsay Ellsworth is a Neonatologist and a Pediatrics provider practicing medicine in Ypsilanti, Michigan. Dr. Ellsworth is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Atresia of Small Intestine, Ellis-Van Creveld Syndrome, Triple X Syndrome, and Cystic Adenomatoid Malformation of Lung.

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    Last Updated: 04/28/2026

    What is the definition of Ellis-Van Creveld Syndrome?

    Ellis-van Creveld (EVC) syndrome is a rare genetic condition that affects bone growth.

    When should I see an Ellis-Van Creveld Syndrome doctor near Ann Arbor, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Ellis-Van Creveld Syndrome doctor near Ann Arbor, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Ellis-Van Creveld Syndrome doctors near Ann Arbor, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Ellis-Van Creveld Syndrome doctors near Ann Arbor, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Ellis-Van Creveld Syndrome doctor near Ann Arbor, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ellis-Van Creveld Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Ellis-Van Creveld Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Ellis-Van Creveld Syndrome doctor near Ann Arbor, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Ellis-Van Creveld Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Ellis-Van Creveld Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Ellis-Van Creveld Syndrome doctors near Ann Arbor, MI?

    Look for the filter feature on the left side of the Ellis-Van Creveld Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Ellis-Van Creveld Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Ellis-Van Creveld Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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